sure, just credit me and that would be fine
i’m not above practically begging.
this goddamn website can spread anything like wildfire and make good shit happen?
fine. i want to use that.
I want this to spread like fucking wildfire. we have. no money and we have shit we need, and…
REBLOG 5,000,000 TIMES
WHERE ARE THERE SO LITTLE NOTES YOU GUYS
REBLOG THIS SAVE SOME LIVES.
I can’t not reblog.
I care too much.
reblogging this to remind myself to donate when I get my purse
reblogging this because I really want them to live like we do.
A MUST TO REBLOG
PLEASE REBLOG. I don’t care if it’s truth or not. But it may be, and you have to understand that this is REALLY important. When you get your hands dirty you just go to the bathroom and clean them. Well this people can’t, and they can’t shower either. And they need that water to drink it, and to stay alive. There’s people out there suffering, and just by reblogging you can help them. So please, I don’t care if this doesn’t fit your blog, this is actually worth it.
On May 28th, my sister, Edna, turned 31.
Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing.
Edna and “Cookie.” I think she was trying to play it cool.
My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver.
That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.)
ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.
May 16, 2014. I wanted a picture. Edna wanted breakfast.
In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33.
Us with mom before she died. (Obviously.)
As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome.
Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome.
In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street - NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners.
Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.”
Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this:
YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS!
But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story.
Edna refusing to go inside.
These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless.
For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.)
Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below.
But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry.
By the way, we were raised by our grandma. Edna and her were very close.
She’s dead, too. Surprise.
She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna.
So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs - I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”)
But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].”
He was one of the two caseworkers that contributed to the report I mentioned above, which also included this:
So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!
Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them.
I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.
Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed.
Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.
That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding.
I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled.
This made me cry
STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.
This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit
They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.
I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.
i can’t do shit in this fucking heat, i get so unmotivated to draw this is why i hate summer..
>spend +6 hours on a drawing
YOOOOOOOOOOOOOOOOOOOOOOOO EVA SUITS
this is thecoopcosplay!!!
Look at these fly mother fuckers.
GUYS THIS IS IMPORTANT I NEED YOU TO SPREAD THIS LIKE WILDFIRE. THESE PEOPLE ARE GOING TO MESS WITH YOUR POSTS AND MAKE THEM TRIGGERING PLEASE PLEASE PLEASE SPREAD THIS IT IS EXTREMELY IMPORTANT. HOVER OVER THE LINK AND CHECK IN YOUR LOWER LEFT HAND CORNER OF YOUR BROWSER TO MAKE SURE ITS A GOOD WEBSITE.
Okay followers, if none have ever interacted with me, please just reblog this. I don’t want people to be triggered by things like this
THEY MIGHT CHANGE LINKS TO SCREAMERS, WHICH NOT ONLY CAN CAUSE ANXIETY AND BE TRIGGERING, BUT CAN CAUSE SEIZURES. PEOPLE REALLY CAN DIE, VERY EASILY, FROM HAVING CERTAIN KINDS OF SEIZURES. so even if you just dont want to get involved with all of this stuff (which is understandable), please please PLEASE reblog this so people dont fall for the trap and DIE.
THEY MADE A LIST DAMMIT
OH NO PLEASE STAY SAFE
OH NO OH NO OH NO OH NO OH NO
Dammit man. These are real people. Some of these might even be schoolmates or that person in the bus on the way home or that one kid who refuses to go in the pool or that dude who dropped their ice cream on the floor
READ THE LIST YOU GUYS.
IF YOU’RE ON IT THEN PLEASE CLOSE YOUR ASK AND SUBMIT. DON’T JUST TURN ANON OFF.
i have a unique art style. i call it “i tried”
Great Barrier Reef authorities have just said YES to coal port companies dumping dredge waste inside this World Heritage Area — all to make way a coal ship superhighway through our Reef. Reblog if this outrageous decision does not represent you. This is a massive disappointment, but we cannot give up hope. Sign up here to make our movement bigger than ever and keep up the fight to #SaveTheReef: http://www.SaveTheReef.org.au
Please Sign the petition guys. So many creatures will be decreased dramatically or even become endangered if we don’t stop it. Also watch the video. It really gave an insight into what would happen if this went ahead.
like dugongs. they’re mad important and live on the reef
Hey, so GetUp! is deciding to take legal action against this travesty, and you can donate to their kick starter here
The Great Barrier Reef Marine Park Authority has caved to the pressure of the mining industry and the Federal Government. The agency charged with "the protection, wise use, understanding and enjoyment of the Great Barrier Reef in perpetuity" has allowed it to be sold out for short-term profits.
Late yesterday, they granted a permit to dump five million tonnes of dredge spoil inside the Great Barrier Reef World Heritage Area.
This destructive project is now allowed to go-ahead - unless we make a last ditch effort to challenge it in court. Click here to learn more, and help fund the legal challenge to save our Reef:
another legal action kick starter can be found here:
WHY DOES THIS NOT HAVE MORE NOTES?? THIS IS SO IMPORTANT!!
SPREAD THE WORD! SAVE THE GREAT BARRIER REEF!
yo, guess what gang? if you’re not into donating money without any reward, have I got the album for you.
$1 a song, or $10 the album, all downloaded off bandcamp, moolah going direct to the reef fighting fund.
it’s got artists such as John Butler, Cat Empire, Missy Higgins, The Bamboos, etc. it’s pretty fucking sick, ay?
go check that shit out. save the reef and find a new aussie indie band or artist to adore
so shit’s just gotten worse
in addition to the coal port, now there’s a huge gas export terminal proposed for Abbot Point
so that’s happening. so we need more hands on deck because the government is not listening to us, so we need to make the noise just a teensy bit louder.
Fuckin greedy rich ass old people need to STOP
BIG NEWS HOMIES!
UNESCO has created a platform on which you can vote to keep the reef safe! UNESCO being the group in which the reef is classified as a world heritage site!
GO! VOTE! POWER! IMPORTANT! ACTION! GO GO GO!
this would be a massive spanner in the dredging works!
GO VOTE PLEASE FOR THE LOVE OF GOD VOTE
YOU DON’T EVEN HAVE TO LIVE IN AUSTRALIA TO DO IT JUST PLEASE VOTE